Thanks to the collaboration with several heart moms who attended our Moms Retreats, we are excited to share some valuable resources they have used throughout their heart journey, particularly with newborns or toddlers. If you would like to add additional resources for heart families to this list, please email alison@campodayin.org with the name of the organization, location (if applicable), website, and what product/services they provide.
In addition, visit our News & Resources webpage to view all of our Posts Categorized as Resources.
- Tubie Friends https://tubiefriends.com/main – adaptable stuffed animals
- Hope Kids https://www.hopekids.org/ – Organization that restores hope & transforms lives of children with life-threatening medical conditions by providing them & their families with ongoing events & activities to enjoy (cost-free)
- A Kid Again https://akidagain.org – Organization that exists to foster hope, happiness, & healing for children with life threatening conditions & their families. Enjoy cost-free, year round adventures near you.
- Heart Heroes https://heartheroes.org and Tiny Superheroes https://tinysuperheroes.com – Personalized superhero capes.
- Feel Better Friend https://fbfdolls.org – Adaptable look-a-like doll
- A Doll Like Me https://adolllikeme.com – Adaptable look-a-like doll
- Julen Smiles https://www.julensmiles.org – Medical port kit bear
- Joseph’s Genetic Journey https://www.facebook.com/groups/275660982595915/ – Free G-tube belts and pads every 6 months
- Bella’s Bumba’s https://bellasbumbas.com – Custom baby seats to aid in mobility
- Kangaroo Kids https://www.kangarookidsclt.org – Medical organization binder
- Kids with Heart https://kidswithheart.org/ Support, education, and resources for those affected by CHD
- Sisters By Heart https://www.sistersbyheart.org/ – Advocacy group for HLHS community—care packages
- The Heart of MFB https://theheartofmfb.org/ – Organization that offers awareness & support to families during pregnancy—care packages
- Women, Infants & Children (WIC) (Minnesota) https://www.health.state.mn.us/people/wic/index.html – For children with MA/TEFRA, they automatically qualify for WIC (Special Supplemental Nutrition Program) and just need to apply! In addition, you can get free admission to places around the Twin Cities, such as the MN Zoo and the Minnesota Children’s Museum
- Free / Discounted Twin Cities Tickets (Minnesota) https://twincitiesfrugalmom.com/2017/05/free-discounted-admission-programs-limited-income-families-minnesota/
- Private Duty Nursing https://www.maximhealthcare.com/healthcare-blog/how-to-pay-for-private-duty-nursing/
- MnCHOICES Assessment https://mn.gov/dhs/partners-and-providers/news-initiatives-reports-workgroups/long-term-services-and-supports/mnchoices/ – MnCHOICES is a comprehensive web-based application that integrates assessment and support planning for Minnesotans who need long-term services and support. For people of all ages who have any type of disability or need long-term services and support. Check your eligibility for Waiver options
- Help Me Grow https://helpmegrowmn.org – Program (birth to 3) that provides weekly in home, free therapy options for child to aid in developmental milestones. Need pediatrician / specialist referral
- Fiona’s Hope http://www.fionashope.org – Tote care packages for families that are experiencing an unexpected extended hospital stay
- Icing Smiles https://www.icingsmiles.org – Provides custom celebration cakes to families impacted by a critical illness of a child
- Beads of Courage https://beadsofcourage.org – Program that integrates the use of beads as tangible symbols of experiences. Their programs help children, teens and their families engage in experiences that promote self-expression and encourage positive coping skills.
- Comfort Cuddles with Erin https://comfortcuddlesbyerin.weebly.com – Cozy comfort blankets
- Minnesota LJ’s Healing http://www.ljshealinghearts.com – Helps with travel expenses & medical expenses for children with CHD
- Chad Greenway’s Lead the Way Foundation (Minnesota) https://www.chadgreenway.com – Provides daily support and life-changing experiences and the TendHer Heart Luncheon: A brunch hosted each year to honor mothers of chronically and critically ill children for the sacrifices they make in caring for their child.
- Alyssa’s Handmades https://www.facebook.com/AlyssasHandmades – Handmade items (at no cost) for CHD children in honor of her daughter, Alyssa, who passed away.
