The Children’s Heart Foundation has been solely dedicated to funding the most promising CHD research since 1996. Their fundraising has improved survival rates, longevity and quality of life for those living with CHD in dramatic and life changing ways. Their vision is a world in which everyone born with a congenital heart defect has the chance […] Read more

There are an estimated 1.5 million adults living with CHD, some of whom are our volunteers and former campers. Adult Congenital Heart Association (ACHA) supports CHD patients & families with programs, services & activities to advance access to resources and specialized care.  Some of their resources include Q&As, webinars for wellness, Walk for 1 in […] Read more

CaringBridge Inc. is a charitable 501(c)(3) non-profit organization established in 1997 which allows people facing various medical conditions and their family and friends to communicate.  CaringBridge is celebrating their 25th anniversary and recently shared the story of an amazing heart family we know and love. The Bushaw family has used the CaringBridge platform to share […] Read more

One of the most highly praised aspects of our fall Family Camp weekends is the parent time session on Saturday afternoon. During this time, heart heroes and siblings are engaged in fun activities with Camp Odayin volunteers and visiting instructors and entertainers. Parents have an opportunity to hear from medical professionals, ask questions, and create […] Read more

Angel Flight Central partners with Camp Odayin to provide flight transportation for our campers that otherwise would not be able to attend Residential Camp. These pilots are volunteers who not only fly campers, but they also pay all the related costs to make the flights free of charge.  Together with their small Flight Coordination Team, […] Read more

On July 21, 2022 we welcomed parents, volunteers, medical professionals and ALL adults that love kids – to join us for a workshop to learn about and celebrate gender diversity. The workshop was designed to establish basic understandings of gender diversity. Through direct presentation, video clips of youth and others talking about gender, and optional […] Read more

(Guest blog post for Adult Congenital Heart Association by Cassandra Reinbold) Two weeks after I was born, the doctor came rushing in with more doctors behind him during my check-up to discover I had a special heart. Appointment after appointments, they discovered I was born with an unrepairable ventricular septal defect. My first surgery was […] Read more

(Guest blog post for Conquering CHD by Laura Hoagland) To say I enjoy summer is an understatement. I LOVE summer! Growing up in the Pacific Northwest summer was filled with family vacations to the coast, afternoons on the lake and attending a local summer camp with school friends. As I got older, and especially throughout […] Read more